Uncategorized

I Can Not Be Cured

Really, it’s true. I can not be cured.  I was born with my disability and I am going to die with my disability.  My disability does not define me, but is simply part of who I am.  I will never recover from it.  Throughout my life I am going to require different supportive services.  When I was born, my disability did not cause any issues in my life.  By the time I was a teen I needed to use crutches on occasion.  In my twenties I need to brace specific joints to keep them in place.  At the age of thirty I purchased my first wheelchair.  In 2001 I found out that I was loosing my hearing.  I started to learn sign language so that I could return to college and successfully complete my bachelor’s degree.   What the future holds is a mystery to me.  Will I need more adaptive equipment, a power chair or a personal care attendant? I have no clue.  I can tell you with certainty that this situation is not unique to me.  These are the stories shared by the thousands of people who have developmental disabilities.  It is a story that does not fit into the current “recovery model” of Mental Health Reform.  It does not fit neatly in a box.  

People with developmental disabilities have been forced, since Mental Health Reform, to try and fit into a recovery model that ignores their unique needs.  Children with developmental disabilities require early intervention services that will maximize their individual strengths and provide a strong base for a child to acquire independent living skills.  Early intervention increases the potential for a future high quality of life.  During the most formative school years, children with developmental disabilities deserve an equitable education. Adults with developmental disabilities need to have access to services that both increase independence and provide support where it is needed. 

We do not need to recover from our disability.  We do not need to be cured.  It is a part of who we are. 

Want more information:

Ehlers-Danlos National Foundation, http://www.ednf.org/

 

2 Comments


  1. Jerimee

    October 5, 2007 at 11:55 am

    Thank you for the post Julia.

    How has No Child Left Behind affected the education of children with developmental disabilities?

  2. […] …Blogged about at I Can Not Be Cured – the progressive pulse, – Last Updated – 8 minutes ago    Follow This Story   Change Your Location San Francisco, CA   Email This Story   Print Got something to say about this story, post your blog here and tell the world. […]

Check Also

How Many Students with Disabilities Dropped Out? This Many.

Last week the Department of Public Instruction-Exceptional Children ...

Top Stories from NCPW

  • News
  • Commentary

“I could choose to do anything else with $50.” But Anca Stefan, a high school English teacher in a D [...]

The Cape Fear River is damaged, contaminated by decades of human malfeasance, negligence and ignoran [...]

Legislative Services Officer Paul Coble appears to be violating the state public records law and is [...]

This morning, the state Supreme Court will hear oral arguments in the pivotal case of Silver, et al. [...]

The post Snail mail appeared first on NC Policy Watch. [...]

65 - number of days since the mass shooting at Marjory Stoneman Douglas High School in Parkland, Flo [...]

In Washington, legal and political walls may be closing in on the slow motion train wreck that is th [...]

These are extraordinary times in the American experiment with representative democracy. In Washingto [...]

Now hiring

NC Policy Watch is now hiring a Managing Editor – click here for more info.